Choosing…

Our life seems to be a bit of a roller coaster these days.  To tell you the truth it’s been a roller coaster the last 4 months of the pregnancy as well.   The unknowns were so great….the fun thing with trisomy 18.  Each case is so different.  There are no text book answers.  Most babies die in utero, which in turn made me on edge the whole pregnancy.  Have I felt Jules kick yet?  When was the last time she moved.  We should stick close to home in case something happens.  Will I go into  labor early?  and the list goes on…

I can’t say the roller coaster has let up much since we had Jules.  Actually, it’s gotten a bit more intense.  Will Jules be born alive?  Yep! (Praise Jesus)

Will she make it through the night??  She’s a fighter!!

Will she stop breathing?? Sometimes, but she comes back:)

How long will she live??

and the list goes on…

So, instead of living in fear each day that it might be the last we have with her, we’ve decided to embrace each day we have and make the most of it.  I can’t say it’s not hard to get a little optimistic when she fights so hard though!

So, here’s how we’ve been enjoying our time.

We had our first outing to the doctor on Monday….

We also found out how much little lady loves the tubby.  She just yawns and coos while she’s in there…

She especially loves kicking her left leg straight out:)

and after that we had a 1 week party for baby girl:) Kynlee and Tate helped make Cupcakes.

and Baby Girl got all dressed up!

We are so enjoying being a family of 5!

Most of the family came to celebrate.  It was great to get a picture of Jules with her family.

Throughout the rest of the week we were spoiled with meals coming in, flowers being delivered, and visitors stopping by to say hi.  Have I mentioned how blessed we are??

By Friday though we were getting a bit antsy to get out of the house.  My sister came over from Wisconsin with her four kids to come and meet Jules.  They are staying at a hotel nearby and mom was having a hard time being the only one staying home, so we decided to make it our first official outing, and it worked out well since we were the only ones at the pool.

The kids loved it!  It was good for them to burn off some energy!

and Jules thought it was pretty fun too!

Although she did need a little bit of oxygen while we were there.

The Lord has blessed us with almost 2 weeks.  We are so lucky!  And your prayers are helping our family immensely! Only God knows how this story will end and we continually press into Him for the peace and understanding we need to continue this journey.

“You saw me before I was born.
Every day of my life was recorded in your book.
Every moment was laid out
before a single day had passed.”

Psalm 139:16

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16 thoughts on “Choosing…”

  1. My husband and I were just discussing one of our favorite worship songs from our church, then I read your latest blog and saw the verse you shared at the end. Thought you may enjoy :) May the Lord continue to bless you and your entire family; providing for your every need, one day at a time.
    http://www.youtube.com/watch?v=w6Nwkt9NQok

  2. She is SO cute! I’ve been following your blog and FB page. She looks like she is really growing! She also looks like she loves the tub!! Glad to see your family of 5! Blessings to you and your family.

  3. She is so darling. You guys are amazing for sharing so much of your journey with Jules with so many. Miss Allie, you are one amazing mama, and it reminds me of Gods love for all of us. He is love. Xoxo

  4. Thanks so much for sharing Jules with us. She is truly a gift from God. Keeping all of your in my prayers. Thanks for sharing your story and journey. Keep fighting Jules!!

  5. Allie,
    Ryan gave Jim (‘Jimmy’ and Ryan worked together) the website and I am hooked! I pray for all of you daily and have to check your blog every day for updates. You are an amazing woman! I love how honest your blog is. All of your children are beautiful. My thoughts and prayers are with you.

    I also LOVE seeing the decorating!!!

  6. God bless you Allie & Ryan and your family. Baby Jules is such a precious gift. Your faith and strength is beyond words. Thank-you for sharing her with us. Our prayers continue daily for you and your beautiful family.

  7. Thanks for the updates and pictures of your wonderful family. Jules is such a fighter, she is a Blessing from God as are Tate, and Kynlee. She almost looks like she is smiling at the pool. Treasure each moment.
    Take Care
    Gail Nelson and Family

  8. Allie, We learned about your blog through your cousin Bubba and our daughter Cassie. We read it every day and are amazed by you all. God new that Juliet Faith needed a special family to take care of her while on this earth. What a blessing your story has been to us and all those who are following it.

  9. Rebecca Warpula

    Thank you Allie for including us in the journey! You are surrounded by a great cloud of witnesses both above and here below. What a privileged to be in the crowd, cheering you all on, speaking your names before the Throne, and witnessing God’s grace and goodness in your lives and in you! Kiss those chubby cheeks for all of us!
    Love from Litchfield,
    Rebecca

  10. Ohhh, i have to say we are a bit jealous. We love sister, auntie, cousin time. Wish we were there too! Happy first pool days Jules!
    Love Auntie Mel and Maddie :) :)

  11. Thanks so much for sharing your journey and let us go on it with you. What a beautiful extended family you have. You have been constantly in my prayers, in my thoughts and minds. May the Lord continue to give you peace during this journey and enjoy every second He blesses you with baby Juliet.

  12. I am praising God with you and praying for your family as you wait on him in his perfect timing. I will tell you with my youngest getting ready to turn 5 on Tuesday that I am even more thankful for each moment with the 4 kids I have! Thanks for sharing your story and your journey.

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