Praises and Blessings….

We’ve had many praises to celebrate this week, that we’d love to pass on to you, because I’m quite sure that many of them are happening because of the prayers of all of you!

We had a doctors appointment last week for Jules.  Nothing is really done at these appointments, but it allows us to ask questions and make sure we are doing everything okay.  Our first praise is that Juliet put on some weight!  It’s not much, and it will need to be quite a bit more in the future in order to keep her healthy, but it’s a step in the right direction.  She was born at 4lb. 11.8 oz. At her 1 week she was 4 lbs. 6 oz.  and at her four week she weighed in at 4 lbs. 9 oz.  So we still aren’t up to birth weight yet.  I have to chuckle anytime someone says she’s getting so big:)  Pictures are deceiving!

Another huge praise is how Jules is breathing.  When we took her in our doctor just looked at her in amazement.  She said she had just delivered a full term baby that needed to stay in the hospital for 6 days on oxygen, and then there’s Juliet, who was born with so many complications, and stayed in the hospital for 12 hours and went home without oxygen.  We’ve barely even been using any at home since we did receive it.  She also said she couldn’t explain how Jules is getting enough oxygen to her lungs because of her severe cleft pallet.  Her pallet on her right side is open almost to under her eye socket, leaving a large open area for all of the air to go.  In order for her to get enough oxygen to go down to her lungs is nothing short of a miracle….imagine that!

3rd huge praise for this week is two fold.  Jules has always loved to suck but because her nostril isn’t open on the left side we didn’t think she could do a nuk.  I decided to go online and order a preemie soothie and bottle just to see, and guess what….she loves them!

It’s amazing that even a preemie soothie looks huge!

She also started drinking from a bottle, which means no more syringes!!  That makes for one happy mama:)

She’s been drinking more since taking the bottle as well.  We are up to about 2 oz every few hours.

Still sporting the Einstein hair:)

So thank you for all of your prayers, it truly is a miracle that we’ve gotten over a month with Jules!

As well as praises we have some amazing blessings we’d love to share as well!

A friend from church let us borrow their fisher price rock n play for Jules and its amazing how much she loves it.  Now she at least starts the night in here and gives mom 1-2 hours of sleep before she gets lonely:)

Thanks Anne!

Also, we got a fun package from a lady my dad knows who has been following our story.  She sent 3 different slings to try along with some other goodies!!

Thanks Cindy!!

We also got a Moby wrap in the mail that I’ve been dying to try.  I love the moby because it works with preemies…..now I just need a tutorial on how to get it on:)

Thanks Audree!

Another fun package we got in the mail was from Erin, who wrote the Halo Sleep Sack company and told them our story.  They graciously donated 2 of their swaddle sleep sacks.  I have never used these before, but wow are they great.  Jules loves being swaddles, snug as a bug in a rug:)

and I just thought I’d show you how “close” sister stays:)  She’ll tell me, “mom, I’m gonna watch Jules.”  and literally, she does:)

even when she’s not happy:)

I was getting a little sick of the 4 outfits Jules had that fit her, but I haven’t been able to do much shopping lately, so what a huge blessing when a friend asked if I wanted to borrow her girls clothes she had from her twins.  We have officially stocked the dresser and moved Jules into her own space!

Thanks Aimee!! I’ve been having so much fun playing dress up:)

The last blessing that I’ll blog on was beyond generous and hard for this girl to accept, but Ryan’s good buddies and spouses all chipped in and spoiled us with this…

The laptop, not the fireplace:)  But now I can blog while sitting by the fire…or in bed…or wherever I want.  Amazing;)  Beyond sweet!  It’s also come in handy a few nights at 3 a.m. while I’m up with little miss:)   Thanks so much guys!

Although all of this “stuff” make life a little easier, the biggest blessing, and I’ll say it again and again, has been the prayers.  I’ve been having  hard time knowing how to pray or what to pray for.  It seems like I always start, “dear Jesus…..” and then my mind goes blank.  So to say that we are relying on your prayers and that they are getting us through is the complete truth, and they are a HUGE blessing!  We love you guys so much!

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18 thoughts on “Praises and Blessings….”

  1. Ryan and Allison, you don’t know me but I just read the post “Praises and Blessings”. A friend of mine posted that this little girl went to be with Jesus and I followed the links to get to your blog. I am sorry for your loss yet happy for the time that you could share with your little Jules “jewel as I look at her” I have 2 girls myself and one has just had a baby that will need special care going forward and the other just found out this week that she is unable to have a baby. God has a special plan for each of us and we just don’t know what it is or why. That is best but hard to take sometimes. I hope you can find comfort and peace in Him. I am getting more sentimental as I get older and found tears in my eyes for you this morning. I will offer up a prayer for you! God Bless!

  2. Riana Klaustermeier

    What a blessing it is to my heart when I read your posts. Your story fills my heart with so much joy for the Lord! I wish I could meet you in person. Your love, faith, trust, hope, and strength are all God given~and it all radiates through your posts! GOD BLESS YOU AND YOUR FAMILY :) and thank you so much for sharing your tender journey with others such as myself. It is a true reminder of how precious every day of our lives is…what a gift.

  3. I do not know you but I have fallen in love with Jules and your family. I too have a daughter that was born 8 months ago with special needs (T21). Hearing your story and sharing your faith in God through your experiences has been such an encouragement to me. I am praying for your daughter and your family every day.

  4. It is good to hear of Jules accomplishments. Jules has such a loving and caring big sister. Hope the boys are feeling better – and back in the house?!. God’s blessings to you Mom, you are an inspiration. May God give you the strength and peace you need. Your family is in my prayers. God bless all of you.

  5. Allie-
    Thank you for being so transparent about your struggles and joys of bringing home your sweet Juliet. We have been in the hospital for just over a month with our little boy who was born with partial trisomy 18 and monosomy 6. He has had 3 surgeries which included putting in a shunt and a feeding tube and now we are finally days away from walking out these hospital doors with our son! Your blog gives me hope and encouragement on what life will look like in the “real world” once we get home. Praying for you and your family!

    Shannon

  6. I have been following your story through a prior co- worker, Diane Huston. I am also a special care nurse at a local hospital. Your story is inspiring to me. Although I love my job, I do believe nobody takes care of these babies as good as their mommy. I also have experience with trisomy, as I was involved in a delivery of a little boy that was quite similar. His parents got to have him home for 5 days, way more than what was expected. I will always cherish that family. Just want to say that your family is awesome for sharing Jules. It reminds me that maybe the reason a special care baby doesn’t want to settle down, is not medical, it is because they just want their family.

  7. Thanks for the updates you give on Jules, She is a Blessing for sure, I love her big sister watching over her, That Love and all the prayers is why she is doing so well. We continue to pray for all of you each day.
    Gail Nelson and Family

  8. I am just in awe everytime I read your blogs. realizing each of us is blessed in so many ways as humans in our sinfull nature there’s always the days that my mind turns forgets to focus on these blessing. but then I read your blogs. you truely show the power of christ in your writtings. and like so many others I am inspired! to continue to pray, walk , talk & live the word of the lord. to open my eyes to others who are in need of prayers, help or kind words in their lives. & to look into my own life & give thanks for all I have been blessed with. your words are beyond touching & beautiful. it is so fun to beable to hear how jules is doing along with the other two & see those priceless pictures. thank you for continuing to share your love, strength, wisdom, faith & so much more. we will continue to pray for you!

  9. Sweet Jules may be little but she has a BIG ministry going on! Jules, and your whole family is ministering to all of us through the living faith that you have in our amazing God. It is truly a privilege to lift up Jules and her dear family before the Mighty, Loving Father God. Thank you for sharing your heart and precious Jules with us all. We will be praying with the many others who are supporting you in prayer. Praising Jesus right along with you!

  10. How wonderful it is that Jules is doing so great! A miracle it is, but nothing short of planned…not by us but by the guy upstairs! He has a marvelous plan for Jules and so far from what you have written his plan is absolutely MARVELOUS! Continued thoughts and prayers for you guys and your little gem, she sure is sweet!! How blessed you are!

  11. If tears could be sent as a blessing or as a prayer. I am sending you tons after reading your last post. May God richly bless all of you as you walk this journey with Jules. She is a bundle of love without question.

  12. Romans 8:26 “In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express.” When you don’t have the words, he knows. I was linked to your story by Adam and Heidi Brachle. I have been praying for your little girl and for your family since before her birth. Praying that the miracles continue!

  13. I am so happy for you and your family! I do not even know you and I pray for you all~ Your Miracle is amazing and is doing such wonderful things~ I pray daily!
    Love and God Bless you and your family and thank you for sharing your story with us~

  14. Yay Allie! And if you need any help with that Moby wrap, give me a call! I think Judah and Asher both spent the first 8 months of their lives in one!

  15. I just wanted to mention that there is a great Youtube video on how to use the Moby!

    And I am so glad that she is able to take the bottle for you!! Our first baby was a preemie, & we did syringe feedlings for the first month. It’s definitely a blessing for all of you.

    I continue to pray for you all!! Thank you so much for sharing your story.

  16. Overwhelmed by the goodness of God in these blessings! I especially love that He is breathing His breath of life into Jules each and every day as there is no other explanation for her lungs receiving so much oxygen. Praises to our Father!!

    We will continue to give voice to their prayers your mind can’t put into words.

    Love & Grace

  17. I was able to find a tutorial online for the Moby when I got mine. If you (and Jules) can get used to the Moby, it is awesome to have, especially with other little ones (I have 3 kids also, ages 3, 2, and 6 mos.). Praying for you daily!

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